Tuesday, May 1, 2012

Casper's Arrival (written 11/5/11)


On Thursday, November 3, 2011 my heart was shattered.  I went in for a regular doctor's checkup, hoping to convince my doctor that I couldn't handle the diabetic issues and that I wanted the baby delivered as soon as possible.  The Monday just passed I had started testing my blood sugar regularly and attempting to change my diet.  We were made aware of the potential diabetic situation after a follow-up ultrasound showed too much amniotic fluid, and a second blood sugar test showed a dangerous spike.

I did what I could – I stopped eating candy, didn’t have any soda, curbed my junk food intake.  I thought I was doing the right things.  But apparently everything turns into sugar and my blood sugar numbers were still too high.  They wanted to schedule meetings and teach me what to eat, they talked about insulin, and my stress level just kept rising.  I was afraid to eat – afraid I would hurt my baby.  I cried every time I took my blood sugar, knowing that my numbers were not going to be right.

So I was apprehensive about my appointment with the doctor, even though it was a regular check and Jay convinced me that I should just tell her we wanted Casper born.  That would be the safest thing for him.  Doctor Jayne understood my predicament – don’t have the right foods, can’t afford the right foods.  Her answer was a simple, “Let’s add some insulin.”  She said she would keep an eye on me more closely, and that everything would be fine. 

The next step in the appointment was to listen to his heartbeat.  I looked forward to that moment every single time I stepped in that office.  It was a confirmation that he was in there and he was healthy, and that we would be together soon.  But Dr. Jayne was having a hard time finding his heart with the monitor.  She was calm, though, and said she would bring in the ultrasound machine.  We knew his head was down, and that he was facing my back – his spine was facing up. 

As she was getting the ultrasound machine ready, I started feeling a sense of dread.  I started thinking about the fact that I hadn’t really felt him move – when was the last time he kicked or squirmed.  Dr. Jayne looked and moved and pushed the monitor all over.  Nothing.  She asked me when the last time I felt him move was, and I started crying.  I couldn’t remember.  I had been busy much of the morning, running errands, worrying about things.  She tried to calm me down, told me that machine wasn’t very accurate.  She said she would rush me to West Bend for a more thorough ultrasound.  She asked me if I knew what she was concerned about, and of course I did.  That something was wrong.

She left the room, and I lost it.  I was begging him to be safe, not to leave me.  I tried to calm myself down and tell myself that the machine was wrong, or just couldn’t get to the right place.  I desperately begged my baby boy to stay with me, because I needed him.

She came back and told me that she was doing everything she could to get me in.  She asked about me getting to the clinic, and I told her I had my dad’s car.  I called Jay and let him know.  All I told him was that they couldn’t hear Casper.  He told me he would be there as soon as possible.  Dr. Jayne came in again and told me she was arguing with the clinic, not wanting to make me wait any time to get in and see what was going on.

I got in the car and headed over the clinic in West Bend.  I called Jay and told him where to go.  He told me he was moving as fast as he could, and I could hear in his voice that he was trying to hold it together.  Which tore apart my self-control.  So I called the only person I knew who could help…  I called my chica.  I told her what had happened, and of course she tried to stay positive.  She told me not to panic, not to lose hope.  She said it could be a fluke.  We caught up on the goings-on of the past month or so, as we both had been too busy to keep each other updated.  She kept on the phone with me all the way until I got to the clinic, and I walked in feeling a little hope.

I checked myself in, heard that the appointment was set for 4:30 (it was only 3 or so), and went down to the radiology department.  As I checked in there, I started to lose it again.  The receptionists knew why I was there, and asked me if I wanted a private room to wait in.  I said yes, told them that Jay was coming shortly.  I sat down in a closed off area and started sobbing.  A few minutes later Jay came, and when I told him how long we were supposed to wait, he went to talk to the receptionists.  They told him no, they were getting things ready for me right away.  Another few minutes, and the radiologist tech came back.  She got right to it, and told me the plan – she was going to get a few pictures, show the radiologist, and then Dr. Jayne would let me know what the diagnosis was.

She told me if I had any questions to please ask, and I said the only thing I wanted to know was if Casper had a heartbeat.  As she was taking the pictures, I was watching on the screen.  I saw nothing moving.  I kept searching and watching, silently begging to see something – anything.  She took a sound recording, and I could see that there was nothing there.  All of his other parts were there, and fine.  But there was no heartbeat.  Nothing.  She told me when she was finished, and I responded, “There is no heartbeat, is there?”  She said no, and Jay and I both fell apart. 

It was my worst nightmare.  The most devastating and heart wrenching response.

She left the room, and came back a few minutes later to tell us that Dr. Jayne would be calling.  Seconds later, the phone rang and Jay answered.  She confirmed the situation, and said we needed to head to the hospital.  She said she would call ahead, and as soon as her appointments were finished for the day she would be there.  She was shocked.  She was also hurting for us.  Her diagnosis was that the blood sugar issue wasn’t caught early enough, and the drastic variances in my blood sugars were too much for Casper to handle.

The hospital had no idea why I was there – thought I was coming for the ultrasound.  The computer wasn’t updated, but apparently they figured out and knew where to send me.  We went upstairs, found our room, and the beginning of the end was happening.  Dad and Linda came to the hospital, Jay went home to tend to the kids.  I was prepped, poked, and emotionally numb.  But aching all the same.  As much as I knew there was no mistake, I kept believing I would feel him start to move.

Dr. Jayne came while Jay was gone.  Dad and Linda went out in the hall so she could check me.  She told me what the plan was – she would give me a drug that would begin to induce.  She wasn’t on call that night, but had told the on-call doctor that she would take care of me.  She assumed that labor would begin around 2 in the morning.  She said that if Jay had any questions when he came back that the nurse could call and she would call back to tell Jay anything he needed.  I wanted to wait for the medication until Jay came.  Jay showed up shortly after, and everything was explained to him.  Dad and Linda said their goodbyes, offered sympathy and love, said to call if we needed anything. 

I got an IV started.  They took blood samples for testing.  They gave me an epidural, which was a new experience for me.  I’ve never had time for medication before.  It was painful, but the anesthesiologist was amazing.  It made me itchy, the nurse made me wear messaging boots so there wouldn’t be blood clots.  Contractions started coming, and then they gave me the numbing injection.  The contractions lessened.  I dozed off and on, the nurse came and checked my vitals and such.

I got a catheter, which I never felt courtesy of the epidural.  The nurse checked, I was getting ready slowly but surely.  I got another dose of the inducing medication.  I started feeling more contractions, and got more of the numbing medication.  Around 1 in the morning, I crashed out.  I don’t think I dreamed, I don’t remember feeling anything or even thinking anything.  I know she came and checked me. 

Around 6 am, I started feeling back pain.  It was intense.  After several hours of relative quiet, things had built up incredibly.  The nurse called Dr. Jayne, and for the anesthesiologist.  But the pain and contractions just kept coming.   I tried to move and change positions, which worked for a short time.  The pain in my back was excruciating, and multiplying with each contraction.  There was pressure, but no urge to push.  Dr. Jayne made it with seconds to spare.  It was clear to me at that moment that the time had come – Casper was coming.  As I was crying and moaning in pain, breathing and trying to control my responses, I began to feel the devastation again.  I knew my little boy was almost here, but that he was already gone.  I tried to remind myself that there would be no little first cry; that he wouldn’t breathe, he wouldn’t nurse, he wouldn’t do anything….  I wanted to quit, give up.  But it was too late, he was almost there. 

After he crowned and his head was out, I could tell there was a change in the room.  Labor almost stopped, there was some kind of activity going on, but I was in another place.  I finished delivering, and Dr. Jayne asked Jay to come down by her.  I remember feeling so empty and just sick.  Casper was beautiful she said.  He was perfect.  But the umbilical cord was wrapped around his neck so tight that the doctor had to cut it off of him.  There was also a knot tied into the cord in another spot.  He had no chance.  The diabetes didn’t make him sick, but caused the extra fluid which allowed him to move around too much and he got himself tangled up.

Everyone told me not to feel guilty, that it was a complete fluke.  Dr. Jayne said in her 10 years of delivering babies, she had never lost a baby so late in the pregnancy, and even though it happened, never had a baby tangled up.  She was clearly upset.  She told us again that he was perfect, and that she didn’t need to do any follow up testing.  It was obvious what has caused him to pass away…  She told us again that he was perfect in every way, and that she was so sorry for us.

They wrapped him up and handing him to me to hold.  Some part of me was still expecting that there was a mistake, that he wasn’t gone, that he would look at me or move or something….  He was so beautiful.  Absolutely perfect.  I had thought I would have a problem with holding him, and loving him, but I felt no different – this was my baby boy.  I felt his spirit still there, and I knew he was slipping away.  Jay and I held him and cried together. 

We kissed him and talked to him, told him how perfect he was and how much we loved him.  We both said he looked so much like Wynter when she was born.  He had beautiful dark hair, and chubby little cheeks.  He looked like an angel….

I know the placenta was delivered shortly after, and I remember Dr. Jayne saying it looked a little wrong.  She figured with the problems with the cord, it wasn’t working correctly or something.  There were no tears or rips on me, the delivery went very well.  I don’t remember much, because I was lost in Casper’s face. 

We spent some time with him, called Dad and told him the baby was delivered.  They had offered to go get the kids and bring them to the hospital.

We kept Casper with us the whole time.  He was cleaned up a little – his skin was very thin and fragile.  Parts were already starting to tear.  He got a little outfit, and a hat, and we wrapped in the blanket that his Auntie Vito sent.  We took pictures, and loved him some more.

Dad and Linda came with the kids, and they all got a chance to see and hold him.  We got more pictures.  The kids were hesitant at first, but they showed him the love that they had grown for him.

We told Wynter that Casper was an angel now, and she seemed to grasp that.  She made a comment about him not being able to open his eyes, and I said no because he was an angel now.  She didn’t want to give him a kiss or anything, but I don’t think she truly understood.

The kids were all a little antsy.  Derek wanted to go back to school because of a test, and Kaylie was ready to go by her dad.  None of the kids slept very well, and I think they were a little lost.  So Dad and Linda took them home and said goodbye.



It was so hard…  When Jay would hold him, I kept wanting to ask if Casper was ok, if he had done anything, if he needed anything.  I knew in my head that it was only Casper’s “shell”, that his spirit wasn’t there anymore.  But in my heart, I couldn’t accept it – no, I didn’t want to.  I didn’t know how…  His nose would leak a little fluid, his mouth would fall open, we had to prop him with a blanket so that he didn’t look wrong.  His skin was red and flakey looking, his lips were a dark blood red.  His eyes were caked shut.  But all I saw was a beautiful little boy that I wanted so much to be what I was waiting for.

I took a nap with him, and was peaceful.  I expected a bad dream, or to wake up in a nightmare.  I thought I would wake up disoriented, or oblivious and shocked all over again.  While I slept, Jay went home for awhile and took Mike and Wynter to Wal-Mart, he knew that Wynter needed some time and to know that daddy and mommy were still there.  Wynter was heartsick at the idea of him leaving again and not bringing her with – she said she needed to go to the hospital so she could take care of Mommy.  She wanted to wear her Casper coat.

After awhile, they all came back (Kaylie had been picked up by her dad for the weekend by then).  We shared some more time with Casper, and finally told the nurse that it was time for him to go.  We all said goodbye, and gave him his last kisses.  I thought I would have a hard time letting him go, but it was time.  I felt it, and I knew that he was gone.

I take comfort in the fact that Grandpa Frank was waiting for him with open arms, to take him in and welcome him with love.  I know that he is watching over us, and we all will carry him in our hearts forever.

We may have only had him for a short time, but his impact on our lives with never be forgotten.

Even on the darkest nights, he will be our shining star…

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